Tuesday, August 14, 2012

1 thing, 1000 times or The Neverending Staircase

Did your Mother ever say to you 'If I've told you once, I've told you a thousand times....'? Did you ever wonder what it meant? In Mums' case, it was an expression of frustration. But let me say, you don't know frustration until you have a child with a disability.

This illustration is probably an appropriate visual. A neverending staircase, going round and round in circles, leaving you feeling like you're going nowhere.

When you have a child with a disaability, you learn that everyone's first answer is 'no'. And it doesn't matter what the question is.

Some questions we've asked that have been met with a no are:

"Can he play a sport?"

"Can he join in with the other kids?"

"Can he join your acting class/bowling league/football club?"

"Can we have a different sort of wheelchair?"

"Is there somewhere for our son to socialise with members of the opposite sex?"

It's all no-no-no.

What we've learned over 21 years and some few months, is that sometimes it's a case of doing one thing a thousand times to get the result we need. Whether it's making one phone call a thousand times to the same person, or the same phone call to a thousand different people, it seems to take that to make things happen.

After what seems like a thousand thousand phone calls, letters, emails and conversations, our son finally achieved some funding to live independently.

After nearly a thousand more, he is now setting up a bowling team of his own.

And I guess it'll take another thousand to help him find a life partner..his next dream.

As the Chinese proverb says... The journey of a lifetime begins with but a single step.

Many, many steps, a thousand thousand things done a thousand thousand thousand times.

It's all worth it in the end.

Look how far we've come already.

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